Lili's a big fan of swings. That's a bit of an understatement, but I'm not sure how else to put it.
I started this blog mainly to share pictures of Lili and keep family and friends up to date with her life. As we start putting together a local down syndrome support group, I hope some people we may not have met will find this blog and have a glimpse into what our life is like now that she's two. Lili is our pride and joy; she puts a smile on my face many times every single day.
Some things have taken a little longer than they may have with a 'typical' kid; but she's walking, talking, using the potty, etc. etc. To steal a line from Rachel of Signing Time, Lili will do what Lili will do when Lili is ready to do it.
We've been through more medical issues than some families, and less than others. She's had a pretty full life so far for a two year old, I'd say - Lili has been a little glowworm, had surgery for acid reflux, enjoyed birthday parties, been across the country and played in the snow.
There are so many other great blogs out there too - I've got a few great ones in my links section to get you started if you're curious. Careful, they can be addictive. The neatest thing I've noticed in some blogs is a shift in focus away from DS toward everyday life. Down Syndrome is just a tiny part of who Lili is - it was the dominant thing on our minds for her first few days, and has become just another characteristic, like brown hair or a button nose.
4 comments:
Your insight is certainly true in my case. The DS is rarely an issue in our life, and usually only beocmes one because someone else makes it so. Meg is Meg is Meg. DS accounts for probably less than 5% of my blog and probably less than 1% of my life.
Most of what I end up writing about my daughter is just Dad & child stuff. The DS is irrelevant
Hi Lili! I love your new pictures. I'm having serious Lili Withdrawal now that I haven't seen you for three weeks (or is it three years??) I'm so glad to see some new pictures! I'm glad I found them while I'm here in Plymouth using the town library's nifty free wireless fast internet :<)
Tell Daddy that his comments make me very proud of my son!
Be well! You and Daddy and Mommy! - Lots and lots of love from Grandma Marian
p.s. from Grandma Marian
xxxooo xxxooo xxxooo !!!
Ds...well, I rarely even write those words out anymore. Elainah is Elainah, is Elainah. I'm with Kim. Great insight.
Beautiful photos...she looks so cute in her glasses.
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