The website for the Centre County Down Syndrome Society is gradually coming together - it's to a point where I'm going to start sending people there to check it out... :)
Stop by and let us know what you think! I know I would have been thrilled to find something like it two years ago...
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This page is our way to share Lili's exciting early days with anyone on the internet. Lilienna Josephine was born June 17, 2005 at Hahnemann Hospital in Philadelphia, PA, to proud mom and dad Sara and David.
At Birth:
7 lb 4.5 oz
19.5 inches
Lots of hair
One bonus chromosome
Welcome to our blog! Lilienna has a lot to share with the world, and this is her little home on the web. Please feel free to comment!
Links
- Lilienna!!! home
- Karen Gaffney swimming Lake Tahoe
- Centre County DS Society
- National DS Society
- National DS Congress
- DSRTF (DS research)
- Down Syndrome Life
- Beloved Life
- ramblings of the bearded one
- Big Dawg Tales
- Mauzy's Musings
- Life According to Emma & Joe
- Words About Words
- Ella Grace with the Pretty Face
- Gabi's World
- Lovely and Amazing
- Narrow Ridge
- Hamula Family
- Livia the Great
- Emma Sage
- DownSyn forum
- Google Earth - cooool.
About Me
On my mantel
Blog contents copyright © 2010
2 comments:
Absolutely first class, gang!!! I'm especially fond of the picture of Sara and Lili, of course :<). I recognize some of the others too...The finances/insurance page could have a Little More Detail :<). I'm glad you didn't wait for that before putting this wonderful website online.
Those movable captions to the pictures are wonderful info bits. Bravo, bravo, bravo!
lots of love to all from Lili's Grandma Marian xxxooo xxxooo xxxooo
Great job on the site. Very well laid out and is very inviting . I really like the statistics on the photo's on the home page.
One idea is I would add WrightsLaw on the resource section of IDEA.
Peace
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