Thursday, February 23, 2006


Well, after a crazy month, Lili is feeling wonderful! She has been sleeping well the last few nights and playing and smiling during the day. She is meeting one therapy goal after another and making us all come up with new goals for her. Hmm...crawl, walk, take over the world!

Here she is sitting up on her own. She can sit up for up to ten minutes by herself now, and catch herself (most of the time) when she leans over.

She's even doing daddy's work for him. The quality has gone way up.

She has a new G-tube called a MIC-key button that sits right up against her skin. We attach a tube to it when she needs it, and can remove it the rest of the time. She's fighting off the last little bit of bronchiolitis, a cold that got into her lungs a little. We're working on getting her a different thickener so her digestive system will have a better shot at working normally. And your tax dollars are hard at work for Lili, as she just got approved for Medicaid. Actually, I think a health savings account would be a much better idea. Then Lili would learn to manage her own health care costs more efficiently. Last 2 sentences: sarcasm.

1 comment:

Grandma Marian said...

Dear Lili, You type beautifully! I am SO delighted to see these two new happy pictures of you! I haven't seen you in ages, puff, puff, now I am working 12-hour days - I'm up to working half the time your parents work.

I'm so happy that you're feeling better!!!!!!!!!!!!!!!!! Be very well, and give a big hug or three or a million to your parents and yourself from me - Lots of love from Grandma Marian