2 days after, she was reaching for Mommy and getting more alert.
She is doing very well now. We have been battling keeping gas at bay; the g-tube is a big help with that. She is eating very well; we've only used the g-tube a few times to feed her. We've decided to go with feeding her home cooked fruits and stuff (which as you can see by our last post, she loves to eat on her own) and formula, to eliminate the unknown foods that make her uncomfortable. We could run an experiment to figure out what they are, but then she'd be miserable for four months and then go off breast milk anyway.
When the gas or constipation isn't bothering her, she is happier than ever.
All of our initial follow-ups went very well. The incision is healing excellently, and the g-tube site looks fine. It still looks interesting to mommy and daddy, but dozens of doctors and nurses have said it looks good since day 1. The surgeon wants to see her again March 1 to replace the g-tube with a 'MIC-key' button that will be practically flush with her skin. We've also had a nurse come to our house a few times to help us learn all this new stuff.
We'll keep you posted!
2 comments:
Lookin' good, Lili! You look wonderful no matter what you go through. You're a trouper.
Be very well! - lots of love from Grandma Marian
Happy Valentine's Day, sweet Lili. Love, Alice
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