Hi everybody!
So sorry it's been so long between posts. Lili's a busy girl!
Lili is scheduled to have surgery to help with acid reflux on Friday. All of us (her health care team) are worried about the possibility of her reflux going down the 'wrong tube'. She drinks thickened milk to help her swallow, but you can't thicken reflux.
So, we've tried every other approach: diet, positioning, Mommy's diet, every medicine imaginable, but they don't take care of it.
So... she's going to have a fundoplication, where they take the top part of the stomach (the fundus) and wrap it around the bottom of the esophagus, to form a one way valve. We're very anxious, of course, but hopeful that this will help her in the long run.
Just wanted to give you all an update...more cute photos to come soon!
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Dear Lili,
I'm one of those who are rooting and praying and cheering for you before, during and after your surgery. It's been wonderful to see you this past weekend and enjoy your winning smile again, and practice nearly-silent letters "p" with you, and hug you and hug you and hug you, and watch your Daddy and Mommy taking such loving care of you. May you have a safe, comfortable, healthy and happy time ahead!!!!!
Lots of love from Grandma Marian xxxooo xxxooo xxxooo
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